Phoenix-Aragon Education
is a Not-for-Profit Association
We are a Social Enterprise that is passionate about harnessing the positive power of the internet to share, inform, and connect - to support well-being.
Phoenix-Aragon Education
is a Not-for-Profit Association
We are a Social Enterprise that is passionate about harnessing the positive power of the internet to share, inform, and connect - to support well-being.
Services
We provide information and connections to improve the lives and well-being of people with Parkinson’s online.
Mission
We provide flexible, easily-accessed information and support to people with Parkinson’s
Team
Meet the team
Story
More about our journey
Our Services
We provide information and connections to improve the lives and well-being of people with Parkinson’s
online.
We are a small group of skilled problem solvers, educators, networkers and supporters.
Our talents enable us to
- Use IT skills to provide opportunities for education, engagement and support
- Provide a variety of direct education, engagement and support events online
- Establish and support sustainable online communities ( OT Parkinson’s Network )
- Produce people-friendly, learn-at-your-own-pace resources about Parkinson’s ( Map of Parkinson's )
We provide
The OT Parkinson’s Network: Virtual education meetings for Occupational Therapists.
We will extend this service to provide:
Virtual education, advice and support meetings for people with Parkinson’s and their relatives/friends, led by medically-trained and highly experienced Occupational Therapists.
We do not want cost to be a barrier to use of our services.
We will use funding to extend our services and reduce the price barrier as we receive more funding.
Our Mission
We dream of a compassionate online world in which people can easily engage and find communities that support their Well-Being. We use our blend of talents and skills to provide a place where people can find support, work through interactive learning resources and seek contact with an individual or a community.
As we grow we will support others to create more spaces online to:
- Provide resources and measure success
- Provide connections for one on one and group support
- Create and link to self-supporting communities
Our current mission is to provide flexible, easily-accessed information and support to people with Parkinson’s, to Health Professionals and others - who strive to improve the day to day lives of people living with the condition.
We support people
- with online opportunities for education and advice
- by connecting peer communities
- by assisting individuals to rise above difficulties in using technology to access our services
Our Story So Far
2022
Fundraising events began to release the Complete App for Free
2017
A Map of Parkinson's Course Frist Edition available as an app on the web and Android!
2016
We started our first web site!
2015
Ana Aragon Developed the Map of Parkinson's Course Content
2015
Phoenix Aragon Education begins!
We blend Information Technology (IT) skills, with occupational therapy (OT) expertise to provide online resources that inform and connect people to promote health and wellbeing.
The Team
Ana Aragon
1960 - 2023
It is with great sadness that we announce the sudden
and unexpected death of Ana Aragon (N.D. Aragon)
She will be greatly missed.
The cause of death was undiagnosed, asymptomatic heart failure.
Ana died peacefully in her sleep on 9th August 2023.
Ana Aragon was the
Co-founder of Phoenix-Aragon Education and an Independent Consultant Occupational Therapist.
Ana created
the
Map of Parkinson's
and the
OT Parkinson's Network
and was an Honorary Senior Lecturer for the University of East Anglia
She was registered (as N.D. Aragon) with the UK Health Professions Council as an Occupational Therapist in 1989, after 3 years full-time training.
Member of;
- The British Association and Royal College of Occupational Therapists - and their Specialist Section for Neurological Practice
- Parkinson's UK
- The International Parkinson and Movement Disorders Society
Ana Aragon | Published Work
Peer reviewed journal articles
A.Aragon, et al. in J.Preston & J.Edmans Eds.
2016
Occupational Therapy and Neurological Conditions Paperback – 6 May 2016
Paperback with 232 pages, published by Wiley Blackwell, Oxford. ISBN: 978-1-118-93611-5
Jelka Jansa & Ana Aragon
2015
Living with Parkinson's and the Emerging Role of Ocuupational Therapy
Parkinson's Disease, Vol 3, pp.1-8.
Download
Aragon, Kings & Playford
2013
Chapter 7 : The role of Occupational Therapy in the rehabilitation of people with movement disorders
pp. 69 - 80 in, Morris & Iansek Eds. (2013) Rehabilitation in Movement Disorders. Hardback with 268 pages, Cambridge University Press. ISBN: 978-1107014008
Jelka Jansa & Ana Aragon & Åsa Lundgren-Nilsson
2011
How People Living with Parkinson's Disease in Four European Countries View Occupational Therapy
European Neurological Journal, Vol 3, Issue1 pp.1-8.
Download
Charmaine Meek, Eric Morgan, Marion F. Walker, Alexandra Furmston, Ana Aragon, Angela Birleson, Vicky Kelly, Carl E. Clarke & Catherine M. Sackley
2010
Meek et al. (2010) OT Pilot Parkinsons
British Journal of Occupational Therapy, Vol 73, Issue 4, pp.178 - 185 OT Pilot Parkinsons.png)
 OT Parkinsons_guidelines.png)
Download
Clare Johnson
Since 2003 Clare has worked at the Specialist Assessment and Rehabilitation Centre at London Road Community Hospital in Derby. This NHS centre is one of only two centres of excellence for people living with Parkinson’s in the United Kingdom [with the other in London]. Clare's main role as an Occupational Therapist is assessment and treatment planning to enable people with Parkinson's and related Movement Disorders to maintain daily function, particularly upper limb function, cognition, sleep and mood.
Clare has attended a number of national and international conferences including the: World Parkinson’s congress 2006 (Washington DC), 2010 (Glasgow) and 2013 (Montreal CA), the Movement Disorder conference 2009 (Paris) and the British Movement Disorder Society (BritMODIS) conferences in 2013, 2016 and 2018.
As part of the Derby Parkinson's team Clare speaks on training courses nationally about the non-motor symptoms of Parkinson's with a particular focus on Sleep, Fatigue, Cognition and Mood. Clare was a co-opted expert for the Royal College of Occupational Therapists on the review of the national NICE guidelines for Parkinson's (2017) and represents Allied Health Professionals nationally on the British Geriatric Society-Movement Disorder Society Committee. Clare also takes an active role in the Parkinson's UK Excellence network, as lead for their national Education-themed working group, who meet regularly to try to make education about Parkinson's available all around the UK.
Hamish
(James G Kelly)
Hamish is a professional with a BSc in Computer Science from The University of Manchester.
He has worked for the NHS and internationally as a
Software Developer with 20 years experience including Web Design, Linux, Android, App Development, Software Design and Support.
He enjoys working with technical and non-technical people, problem solving and learning about new technology.
